Snoozes up to 44 Days,Teenager Suffers Beauty Syndrome
AFRIK UPDATE
Despite appearing awake Lois is left with no memory of her bizarre behaviour.
In order to be officially diagnosed with KLS, doctors must exclude all other possibilities.
Lois Woods suffers
sleeping episodes that last for weeks at a time
from a rare sleeping disorder, which means she snoozes for up to 44 days
at a time. She is
also affected by 'zombie-like' trances when she attack herself and her family.
When she
is suffering an episode she bashes her head against walls, attacks her young
brother and gorges on junk food in nighttime fridge raids.
Despite appearing awake Lois is left with no memory of her bizarre behaviour.
Her GP
believes the A* student, from Stevenage, Hertfordshire, suffers from Kleine-Levin
Syndrome - a rare and complex neurological disorder which affects just 65
people in the UK.
Her
mother, Setta Woods, said: 'People call KLS sleeping beauty syndrome, but it's
been no fairytale.
'We call
her Little Lois when she's in episode, she is unpleasant and it's like she has
severe behavioural problems.
'She goes
from being like a zombie and ignoring me or huffing and puffing, to like a
two-year-old, bouncing off the walls.
'Lois is
now afraid to go to sleep in case she doesn't wake up again. It's been soul
destroying to watch because she once had everything going for her.'
The
disorder struck at 14 when Lois came home from school one day and passed out
face-down on the sofa.
Lois
said: 'I remember walking into the living room and I was watching TV. The next
thing I knew I was awake and the programme I was watching had finished hours
ago. It felt like I'd only been asleep for half an hour.'
The
teenager entered a comatose state for almost two months, quickly falling back
to sleep after she was woken to eat and drink.
Mrs
Woods' said: 'I got to school to pick Lois up one day and they brought her out in
a wheelchair. She had her hands over her eyes like a mask and was shouting
"I'm Batman, I'm Batman!" When she eventually woke up, she couldn't
even remember being at school.'
Lois was
taken to hospital after she fell asleep unexpectedly while on the stairs. Even
doctors couldn't wake her and were baffled by her behaviour.
In order to be officially diagnosed with KLS, doctors must exclude all other possibilities.
Lois said:
'Most doctors haven't even heard of KLS. To an outsider, it could look like I'm
skiving or insane.
'They
thought I could be narcoleptic, schizophrenic or be suffering from chronic
fatigue. But I had seen a documentary about KLS and both me and my mum knew
that's what it was.'
KLS
usually strikes in adolescence and the main symptoms are long and disturbed sleep,
altered behaviour and excessive appetite.
The cause
of KLS is unknown but it can often be triggered by an infection or head injury.
Lois now
needs full-time care as when she is in episode, she can be a danger to herself
and others.
She said:
'I've woken up before and my hands have been covered in blood and my knuckles
have been all bruised.
'When I
looked in the mirror I had this big bruise on my forehead! My mum said I'd been
punching a wall over and over again and smashing my head against a cupboard.
'The
weirdest thing I've ever done in episode is get my ears pierced and dye my hair
red. When I woke up and mum told me that, I thought she was joking.
'I do
things in my sleep that I would never do if I was awake. I get so aggressive
and will hurt my little brother. I woke up once and he had a bruise the size of
an orange. I hate myself for it.'
Lois' KLS
has meant she has missed most of her vital GCSE lessons at school and has gone
from expecting 12 GCSEs to just four.
She said:
'I sat my history GCSE when I was in episode, but I managed to get a C! I
remember walking into the room and sitting at my desk, but that's it!
'I am
really annoyed because I was an A* student and now I feel like I'm being
constantly watched.
'I was
supposed to have a basketball scholarship to a college that would have put me
in an Ivy League school.
'It's so
hard to see my friends from basketball who are now going to be in the Olympics.
I see them and I just wish I could still do that. But I can't.'
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